Kids like Alfie need your help

Help protect the childhoods mito tries to steal.

Your gift moves research forward, surrounds families with care, and helps stop mito from stealing more childhoods. Because families like Olly’s shouldn’t have to fight so hard — or wonder if help will come in time.

$100,094 raised

$60,000 Goal

$100,094 raised

$60,000 Goal

Olly was just 5 years old when he went in for a routine surgery...

His mum, Abby, expected to take him home the next day. 

Instead, a nurse whispered words no parent should hear: 
“We can’t wake him up.” 

That was the moment mito revealed itself — a rare, relentless disease that silently attacks the body’s energy supply. 

Today, Olly is 8. He lives with epilepsy, hearing loss, and muscles that often won’t move. 

There is still no cure. 

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Your tax-deductible donation can speed up access to treatments. Here's how you can help save more lives.

$35

Supports urgent and essential helpline services for familes with nowhere to turn.

$42

Can help fund education programs that ensure mito is better understood and treated.

$79

Could enable the next treatment breakthrough for kids like Olly.

Little Olly bravely endures the epilepsy, hearing loss, and sleep problems among many other symptoms caused by mito. Meanwhile, every 6 days another Australian child faces the same diagnosis. Your support means the world to the families still searching for answers — and for hope. 

What is mito?

Everyone has mitochondria in their cells. They provide 90% of the energy needed to sustain life. When your mitochondria don't work properly it can be life threatening. Mitochondrial disease (mito) is a devastating genetic disorder that robs the body’s cells of energy, often causing multiple organ dysfunction and failure.

Every cell is affected: Mito can impact every system in the body, as cells can’t generate the energy needed to function properly.

A silent thief: Mito symptoms often appear without warning and progress rapidly, as seen with Olly. Even children who seem healthy can suddenly experience life-threatening complications.

No cure yet: Despite being a devastating condition, there is currently no cure for mito. Treatments only manage symptoms, and research is urgently needed to discover life-saving therapies.

Why your help matters

70+ Australian children each year: More than 70 children will be born this year in Australia who will develop a severe form of mito.

Urgent research needed: With your donation, we can accelerate research into life-saving treatments and cures. Your support brings hope to families affected by mito, ensuring children like Olly can have a future.