I'm raising vital funds for mito!
Aeron Xin is a six years old boy. He is hansome, sunshine and kind. The family loves him so much.
Unfortunately, he started walking disorder from last May. Further, the genic test showed the mitochondrial RNA variation. This is a rare disease in the world. So far, there is no clear and regular medicine or treatment method. This disease almost destroys the boy and his family. On Aug 10th,2023, he had to enter the hospital since of respiratory failure and dysphagia.
In almost the year, he suffered so much. He got innumerable injection and tests. But in the first six months, the disease was more and more serious. Everyday, he and his family were crying.
His family also searched lots of studies, thesis and theory knowledge. Aeron`s etiology was found and made clear. He is caused by a RNA NT5 variation at 13042 G to A. This caused the function of respiratory chain complex I is affected. And the consequence results in the brain`s function on breathing and swallowing.
According to the finding, we treated NADH and panthenol since this Feburary. And the MRI is showing some improvements on his brain.
So we would like to get your supports to continue the cure to make impossible to possible.
In the year, the cure in hospital spent almost 160,000 USD. Aeron really needs your generous support for continuous fighting on the mitochondrial disease.
Thanks!
