Noah The Legend

By Michael James Smith

Noah The Legend

This is Noah Barlow. My friend Kat and Mark’s Son. He’s a legend. 13 years old. An inspiration to kids and adults all over the world. A true warrior who never ceases to amaze, teach and inspire both the medical profession and society itself from top to bottom. Just have a quick read of a teeny tiny bit of what he’s endured since he entered this world… 


  • The medical world said reaching the age of 10 would be unlikelyΒ 

  • 6 years of vomiting 10-20 times a day.Β 

  • 7 years trying to find food his body would actually accept

  • Hundreds and hundreds of seizures.Β 

  • 9 metabolic strokes (each one taking something) His eye sight in one eye, his ability to walk this time.

  • Every system in his body is affected.Β 

  • No treatment.Β 

  • No cure.Β 

  • Reliance on new science and new medicine and new research to evolve into hope.Β 

  • Noah is currently the only living person in the world diagnosed withΒ mitochondrial disorderΒ - a rare genetic disease affecting every cell in his body. 1 child every week will be born with a life threatening form of MITO

'Every system fails'

"Mito is a really strange illness," adds Kat, his Mum. "From the top of your head to the bottom of your toes, it can affect every single part of it. "

"In Noah's case, he's got brain damage, is legally blind, he's fed through a tube 24/7 and he needs a wheelchair because as soon as he expends energy he starts to fall apart. It's a cascade of symptoms as every system fails at different times."

Soooooooo… mine and Adam’s little swims are an embarrassment to call a challenge really… but we’re going to swim for Noah and for MITO… and raise what we can for Noah and all connected / affected by MITOCHONDRIAL Disease which needs funding to research and understand this most difficult of human conditions.Β 

Noah - the Ninja. The warrior. The inspirer. The lovely lad. Keep being amazingΒ πŸ’ͺπŸ»β€οΈπŸ™

Here are some links around MITO itself and about Noah and his family’s challenges.

https://www.mito.org.au/mito-stories/noahs-story/

https://7news.com.au/lifestyle/doctors-said-noah-wouldnt-live-past-age-10-this-is-why-his-mum-calls-it-a-terrible-gift-c-6174312

https://honey.nine.com.au/parenting/rare-disease-day-genetic-mitochondrial-disease-noah/213ab8ad-dba8-495a-8e63-c51041a3dd17

And here’s HIS awesome children’s book for charity should you wish to support further…

https://bit.ly/2RMqNTb

FYI - $20 Aussie Dollars = Β£10 pounds ish... so our target is Β£2000 pounds (Β£300 more than last years amazing support from you all for MIND... for an additional 2 lakes and 18.5 miles swimming - uh!)Β 

Thanks a lot


Thank you to my Sponsors

$20

Anonymous

$10.86

Anonymous

$78

Anonymous

$21.72

Sheila Jones

$54.30

Skw

Well done Mike, top effort for a fantastic cause

$150

Paul And Jaling Bohannon

Congrats Adam and Michael on your massive accomplishments! Well done! Although we don’t know Noah on a personal level, by the sound of his bio he sounds like a bad ass kid and a true inspiration. Sending Noah our best wishes from overseas!

$20

Dave H

Well done Mike

$20

Jb

Well done both. Extremely tough challenge. Amazing work to complete!

$21.72

Graham Isherwood

Having read the Bio numerous times, I am not sure I have the words that would do justice. My utter admiration to Noah, the family and the fund raisers.

$54.30

Matt Abbott

$108.60

Lynda Smith

Well done X

$10.86

Rick Blyth

Well done Mike! πŸ”₯πŸ”₯πŸ”₯

$40

Anonymous

$58

Anonymous

$108.60

Tony Rhodes

Gents - l'm just a friend of a Friend who knows Kat and facebook has introduced me to Noah - he is without doubt the most remarkable kid in the world - always smiling ,alweays exploring so just a small donation but great work - hope you both survived Tony

$16.29

Faye Hughes-eastwood

This one’s got Lyn’s really - support team needs support too! Joking aside, well done Mike! What an achievement! Faye, Ash & Freddie

$100

Ian Thistlethwaite

Well done on the swim guys!

$100

Richard Bentham

Well done Mike.

$40

Roy Allwood

$54.30

Spaghetti Crew Xx

We think you’re both incredible to do this. Well done, from Australia!

$21.72

Andrew Hancock

Good luck!

$20

Richard Hepburn

Good luck pal

$21.72

The Walmsley’s

Good luck Adam and Mike but you don’t need luck your gonna smash it x

$43.44

Amy Yates

You guys have got this! Just keep swimming!

$38.01

Dan Taylor

Thought I’d give extra to aim for your goal :) good luck guys

$21.72

Jack Melling

Good Luck Mike!

$20

Emma Smith

Good luck guys 🀞

$20

Caroline Mckenna

Good Luck Mike!

$27.15

Peter Ockenden

Good luck guys - was up there in June and it was a bit fresh!

$10.86

Matt Buckle

Good luck

$43.44

James L

$108.60

Allan And Carole

To Mike and Adam and Noah, the 3 Ninjas, Hope all goes well tomorrow for ‘The Big One’. Love and Best Wishes Allan and Carole xx

$54.30

Ste Carr

Good luck for tomorrow… Amazing job done already by you both

$21.72

Walsh

Good luck tomorrow mike.

$16.29

Monika Wiktor

Good luck Mike πŸ‘ from Adam and family ❀️

$20

Andrew Mullins

Well done both - Amazing what you are doing!

$16.29

Leon Brown

$21.72

Stuart Jones

Goo luck lads!

$20

Lewis Hodgkinson

$16.29

Maria, Simon & Bella Haslam-steele

Good luck on your last one Mike!! What a trooper x

$21.72

Dean Critchley

$10

Ian Holt

good luck Smudger!

$23.59

Steve Dodgin

$40

Anonymous

$108.60

John Smudger & Team

Good luck, huge efforts from the Bolton maffice for young Noah and Team Aus. May the Force be with you all all - always

$43.44

Linda Foster

$40

Ingrid Battersby

Good Luck on Saturdaynto you and Adam from Mike and `Ingrid `Battersby friends of John and Elaine

$54.30

Charlotte Taylor

Smash it boys 🧑

$21.72

David Whitehead

Go smash it Adam and Mike, great cause πŸ‘

$21.72

Rachel Findlay

$21.72

Neil Smallridge

Good luck, nice work.

$106.43

Anonymous

$21.72

Agar’s

Amazing achievement and for you both! Well done! Go smash your next swim.

$43.44

Barny & Jen

Go smash it boys

$40

Dan

Good luck guys. In awe of everyone involved in the story.

$21.72

Lisa Power

Hope you reach the target ! Great work.

$32.58

Katy Leach

Best of luck with all the fundraising ❀️ Fantastic cause

$21.72

Polly Bedford

Good luck with your last swim lads. Great achievement

$20

Anonymous

Good luck with your Windermere swim lads. Well done

$21.72

Graeme Nicholson

$21.72

Anthony Jones

Well done!!! Keep going :)

$21.72

Kevin Wheeldon

$20

Andrew Turner

$150

Plumb Factory

Good Luck Adam and please give our best to Noah - Plumb factory are routing for you both

$20

Andrew Pollard

Good luck Mike & all for a very worthy & deserving cause!

$10.86

Laura Carver

Good luck guys!

$10

Anonymous

Great effort Mike

$40

Shaun Henderson

$43.44

Paul Trimingham

Beers soon mate? well done here. you are a special dude.

$5.43

Anonymous

$7.60

Wayne Stonebank

Got the conversion wrong, making up the difference!

$13

Wayne Stonebank

Incredible cause and a very difficult challenge, good luck both!

$108.60

Anonymous

$50

Ruaidhri Mulligan

Great cause Mike. All the best on the final leg.

$40

Gareth Bromley

Well done dude what a great achievement for a wonderful cause. Noah ...... what an inspiration too x πŸ‘ πŸ™ŒπŸΌ ❀️

$20

Jacqui French

Noah is such an inspiration. Thanks for raising awareness

$43.44

Anonymous

$54.30

Chrissie Pickin

$108.60

Paul & Susie Nagle

Fantastic fundraising, Mike and Adam. Good luck with the swims. Noah - our amazing great- nephew, our inspiration - so proud of you. Love you always xxx

$100

Allan And Carole

Best Wishes to the 3 Ninjas, Noah, Mike and Adam.

$32.58

Caz Sidebotham

Awesome effort boys πŸ™ŒπŸ» you got this πŸ‘πŸ»

$21.72

Cass

Go guys πŸ’ͺ

$30

Sarah Cullen

$21.72

Elizabeth Francis

Good luck guys! Such a worthy cause πŸ™Œ

$43.44

Geraldine Deavall

Good luck guys, fab cause GED & Steve xx

$54.30

Paul & Caroline Ashton

Good luck Adam on the swimπŸ‘

$10.86

Amy Brierley

$21.72

Nicola Bradbury

Good Luck, Mike. Lots of love, The Bradbury’s ❀️ xxx

$190

Jean Taylor

Good luck adam n mike we’ll see you at the end.xx

$32.58

Dave & Rhia

Good luck what an amazing cause love you both xxx

$5.43

Limit Lash

$43.44

Nicola Culican

Good luck with your swims x

$43.44

Rachel, Dave , David & Jack Gore

$54.30

Dave & Anne Kelly

I don’t know how you do it guys but keep on!

$81.45

Gary Morris

$54.30

Stuart Protano

$100

Alex And Steph Clarke

with much love and gratitude for your inspiration Noah the warrior

$100

Martin And Jackie O’ Kane

❀️to Noah the Warriors and all his family , inspiration

$30

Lee & Steph

Well done Mike 🏊‍♂️

$40

Nic Sidebotham

Amazing effort you two. Love Noodle xx

$217.20

Jack Smith

❀️to you all , and well done Mike, my son and friend, proud of you, swim for Noah today , one down, 2 to go ❀️

$25

Dan Taylor

Good luck guys. Go smash it!!

$38.01

Level Accounting

$43.44

Kevin Titmus

Awesome effort lads 🏊‍β™‚οΈπŸŠ‍♂️

$54.30

Jayne Buchanan

A very worthy cause, good luck 😊

$54.30

Patricia Coop

Hope it helps in some way

$40

Cat Mc

Amazing effort guys. Will be cheering u on each swim πŸ‘πŸ‘

$54.30

Adam Taylor

What an amazing young lad Noah is.

$200

John & Elaine Nagle

Thank-you to you both. Legends in your own right. The Mito Foundation shares its research world wide. Good Luck and much love

$54.30

Steven Walker

$50

Adam P

Amazing story, what an incredible young man.

$10

Gary Bramhall

Incredibly awesome strength and power. A truly inspiring person with incredible parents and family. Keep moving forward.

$50

Michael Smith

Keep inspiring Noah πŸ™