Noah The Legend
This is Noah Barlow. My friend Kat and Markβs Son. Heβs a legend. 13 years old. An inspiration to kids and adults all over the world. A true warrior who never ceases to amaze, teach and inspire both the medical profession and society itself from top to bottom. Just have a quick read of a teeny tiny bit of what heβs endured since he entered this worldβ¦Β
- The medical world said reaching the age of 10 would be unlikelyΒ
- 6 years of vomiting 10-20 times a day.Β
- 7 years trying to find food his body would actually accept
- Hundreds and hundreds of seizures.Β
- 9 metabolic strokes (each one taking something) His eye sight in one eye, his ability to walk this time.
- Every system in his body is affected.Β
- No treatment.Β
- No cure.Β
- Reliance on new science and new medicine and new research to evolve into hope.Β
- Noah is currently the only living person in the world diagnosed withΒ mitochondrial disorderΒ - a rare genetic disease affecting every cell in his body. 1 child every week will be born with a life threatening form of MITO
'Every system fails'
"Mito is a really strange illness," adds Kat, his Mum. "From the top of your head to the bottom of your toes, it can affect every single part of it. "
"In Noah's case, he's got brain damage, is legally blind, he's fed through a tube 24/7 and he needs a wheelchair because as soon as he expends energy he starts to fall apart. It's a cascade of symptoms as every system fails at different times."
Sooooooooβ¦ mine and Adamβs little swims are an embarrassment to call a challenge reallyβ¦ but weβre going to swim for Noah and for MITOβ¦ and raise what we can for Noah and all connected / affected by MITOCHONDRIAL Disease which needs funding to research and understand this most difficult of human conditions.Β
Noah - the Ninja. The warrior. The inspirer. The lovely lad. Keep being amazingΒ πͺπ»β€οΈπ
Here are some links around MITO itself and about Noah and his familyβs challenges.
https://www.mito.org.au/mito-stories/noahs-story/
And hereβs HIS awesome childrenβs book for charity should you wish to support furtherβ¦
FYI - $20 Aussie Dollars = Β£10 pounds ish... so our target is Β£2000 pounds (Β£300 more than last years amazing support from you all for MIND... for an additional 2 lakes and 18.5 miles swimming - uh!)Β
Thanks a lot
Thank you to my Sponsors
$20
Anonymous
$10.86
Anonymous
$78
Anonymous
$21.72
Sheila Jones
$54.30
Skw
Well done Mike, top effort for a fantastic cause
$150
Paul And Jaling Bohannon
Congrats Adam and Michael on your massive accomplishments! Well done! Although we don’t know Noah on a personal level, by the sound of his bio he sounds like a bad ass kid and a true inspiration. Sending Noah our best wishes from overseas!
$20
Dave H
Well done Mike
$20
Jb
Well done both. Extremely tough challenge. Amazing work to complete!
$21.72
Graham Isherwood
Having read the Bio numerous times, I am not sure I have the words that would do justice. My utter admiration to Noah, the family and the fund raisers.
$54.30
Matt Abbott
$108.60
Lynda Smith
Well done X
$10.86
Rick Blyth
Well done Mike! π₯π₯π₯
$40
Anonymous
$58
Anonymous
$108.60
Tony Rhodes
Gents - l'm just a friend of a Friend who knows Kat and facebook has introduced me to Noah - he is without doubt the most remarkable kid in the world - always smiling ,alweays exploring so just a small donation but great work - hope you both survived Tony
$16.29
Faye Hughes-eastwood
This one’s got Lyn’s really - support team needs support too! Joking aside, well done Mike! What an achievement! Faye, Ash & Freddie
$100
Ian Thistlethwaite
Well done on the swim guys!
$100
Richard Bentham
Well done Mike.
$40
Roy Allwood
$54.30
Spaghetti Crew Xx
We think you’re both incredible to do this. Well done, from Australia!
$21.72
Andrew Hancock
Good luck!
$20
Richard Hepburn
Good luck pal
$21.72
The Walmsley’s
Good luck Adam and Mike but you don’t need luck your gonna smash it x
$43.44
Amy Yates
You guys have got this! Just keep swimming!
$38.01
Dan Taylor
Thought I’d give extra to aim for your goal :) good luck guys
$21.72
Jack Melling
Good Luck Mike!
$20
Emma Smith
Good luck guys π€
$20
Caroline Mckenna
Good Luck Mike!
$27.15
Peter Ockenden
Good luck guys - was up there in June and it was a bit fresh!
$10.86
Matt Buckle
Good luck
$43.44
James L
$108.60
Allan And Carole
To Mike and Adam and Noah, the 3 Ninjas, Hope all goes well tomorrow for ‘The Big One’. Love and Best Wishes Allan and Carole xx
$54.30
Ste Carr
Good luck for tomorrow… Amazing job done already by you both
$21.72
Walsh
Good luck tomorrow mike.
$16.29
Monika Wiktor
Good luck Mike π from Adam and family β€οΈ
$20
Andrew Mullins
Well done both - Amazing what you are doing!
$16.29
Leon Brown
$21.72
Stuart Jones
Goo luck lads!
$20
Lewis Hodgkinson
$16.29
Maria, Simon & Bella Haslam-steele
Good luck on your last one Mike!! What a trooper x
$21.72
Dean Critchley
$10
Ian Holt
good luck Smudger!
$23.59
Steve Dodgin
$40
Anonymous
$108.60
John Smudger & Team
Good luck, huge efforts from the Bolton maffice for young Noah and Team Aus. May the Force be with you all all - always
$43.44
Linda Foster
$40
Ingrid Battersby
Good Luck on Saturdaynto you and Adam from Mike and `Ingrid `Battersby friends of John and Elaine
$54.30
Charlotte Taylor
Smash it boys π§‘
$21.72
David Whitehead
Go smash it Adam and Mike, great cause π
$21.72
Rachel Findlay
$21.72
Neil Smallridge
Good luck, nice work.
$106.43
Anonymous
$21.72
Agar’s
Amazing achievement and for you both! Well done! Go smash your next swim.
$43.44
Barny & Jen
Go smash it boys
$40
Dan
Good luck guys. In awe of everyone involved in the story.
$21.72
Lisa Power
Hope you reach the target ! Great work.
$32.58
Katy Leach
Best of luck with all the fundraising β€οΈ Fantastic cause
$21.72
Polly Bedford
Good luck with your last swim lads. Great achievement
$20
Anonymous
Good luck with your Windermere swim lads. Well done
$21.72
Graeme Nicholson
$21.72
Anthony Jones
Well done!!! Keep going :)
$21.72
Kevin Wheeldon
$20
Andrew Turner
$150
Plumb Factory
Good Luck Adam and please give our best to Noah - Plumb factory are routing for you both
$20
Andrew Pollard
Good luck Mike & all for a very worthy & deserving cause!
$10.86
Laura Carver
Good luck guys!
$10
Anonymous
Great effort Mike
$40
Shaun Henderson
$43.44
Paul Trimingham
Beers soon mate? well done here. you are a special dude.
$5.43
Anonymous
$7.60
Wayne Stonebank
Got the conversion wrong, making up the difference!
$13
Wayne Stonebank
Incredible cause and a very difficult challenge, good luck both!
$108.60
Anonymous
$50
Ruaidhri Mulligan
Great cause Mike. All the best on the final leg.
$40
Gareth Bromley
Well done dude what a great achievement for a wonderful cause. Noah ...... what an inspiration too x π ππΌ β€οΈ
$20
Jacqui French
Noah is such an inspiration. Thanks for raising awareness
$43.44
Anonymous
$54.30
Chrissie Pickin
$108.60
Paul & Susie Nagle
Fantastic fundraising, Mike and Adam. Good luck with the swims. Noah - our amazing great- nephew, our inspiration - so proud of you. Love you always xxx
$100
Allan And Carole
Best Wishes to the 3 Ninjas, Noah, Mike and Adam.
$32.58
Caz Sidebotham
Awesome effort boys ππ» you got this ππ»
$21.72
Cass
Go guys πͺ
$30
Sarah Cullen
$21.72
Elizabeth Francis
Good luck guys! Such a worthy cause π
$43.44
Geraldine Deavall
Good luck guys, fab cause GED & Steve xx
$54.30
Paul & Caroline Ashton
Good luck Adam on the swimπ
$10.86
Amy Brierley
$21.72
Nicola Bradbury
Good Luck, Mike. Lots of love, The Bradbury’s β€οΈ xxx
$190
Jean Taylor
Good luck adam n mike we’ll see you at the end.xx
$32.58
Dave & Rhia
Good luck what an amazing cause love you both xxx
$5.43
Limit Lash
$43.44
Nicola Culican
Good luck with your swims x
$43.44
Rachel, Dave , David & Jack Gore
$54.30
Dave & Anne Kelly
I don’t know how you do it guys but keep on!
$81.45
Gary Morris
$54.30
Stuart Protano
$100
Alex And Steph Clarke
with much love and gratitude for your inspiration Noah the warrior
$100
Martin And Jackie O’ Kane
β€οΈto Noah the Warriors and all his family , inspiration
$30
Lee & Steph
Well done Mike πβοΈ
$40
Nic Sidebotham
Amazing effort you two. Love Noodle xx
$217.20
Jack Smith
β€οΈto you all , and well done Mike, my son and friend, proud of you, swim for Noah today , one down, 2 to go β€οΈ
$25
Dan Taylor
Good luck guys. Go smash it!!
$38.01
Level Accounting
$43.44
Kevin Titmus
Awesome effort lads πβοΈπβοΈ
$54.30
Jayne Buchanan
A very worthy cause, good luck π
$54.30
Patricia Coop
Hope it helps in some way
$40
Cat Mc
Amazing effort guys. Will be cheering u on each swim ππ
$54.30
Adam Taylor
What an amazing young lad Noah is.
$200
John & Elaine Nagle
Thank-you to you both. Legends in your own right. The Mito Foundation shares its research world wide. Good Luck and much love
$54.30
Steven Walker
$50
Adam P
Amazing story, what an incredible young man.
$10
Gary Bramhall
Incredibly awesome strength and power. A truly inspiring person with incredible parents and family. Keep moving forward.
$50
Michael Smith
Keep inspiring Noah π